August 26, 2026 @ 1:00 PM EDT

Sleep changes are one of the most important—and often most confusing—features of Lewy body dementia (LBD). This webinar explores how disruptions in REM sleep, dream enactment, and nighttime restlessness connect to daytime challenges such as hallucinations, fluctuations in thinking, mood changes, and behavioral symptoms. Designed for individuals living with LBD, care partners, and health care professionals, this session will break down the science in clear, practical terms while offering real-world insights into what these symptoms mean and how they can be managed. You will learn why sleep and neuropsychiatric symptoms are so closely linked in LBD, what signs to watch for, and how improving sleep quality can support better daily functioning and well-being. Whether you are navigating these symptoms personally, supporting someone who is, or caring for patients, this webinar will provide valuable knowledge to help you better understand the nighttime–daytime connection in LBD and approach symptom management with greater confidence and clarity. At the end of the webinar, you will be able to: Examine the sleep–symptom connection: Learn how sleep changes, dream enactment, and nighttime disruptions contribute to hallucinations, cognitive fluctuations, mood changes, and other neuropsychiatric symptoms in LBD. Recognize early signs and patterns: Gain practical insight into what to look for—both at night and during the day—to better identify when sleep issues may be driving behavioral or cognitive changes. Explore strategies that support better sleep and daily functioning: Discover approaches that can help improve sleep quality and reduce symptom intensity, empowering individuals with LBD, care partners, and clinicians to respond more effectively. For questions or more information, please email [email protected] .

September 19, 2026 @ 10:00 AM - 3:00 PM EDT|Live! by Loews – Arlington

Presented by The Michael J. Fox Foundation for Parkinson’s Research, Parkinson’s IQ + You is a free educational event designed for people with Parkinson’s and their loved ones. This in-person event features sessions on navigating Parkinson’s, managing care, and the latest research. The accompanying Partner Expo includes information on treatment options and local resources for the Parkinson’s community. The Lewy Body Dementia Association is proud to be a National Partner of Parkinson’s IQ + You. Be sure to visit us in the Partner Expo. For more information and registration, please visit: https://www.michaeljfox.org/PDIQDallas Questions: [email protected]

September 24, 2026 @ 1:00 PM - 2:00 PM EDT

Many people living with Lewy body dementia (LBD) also have Alzheimer's disease (AD) pathology—the amyloid plaques and tau tangles associated with AD—in their brains at the same time. This overlap, known as co-pathology, is more common than many people realize, and it can affect how LBD looks and progresses. But what does that actually mean for someone living with LBD, or for the people who care for them? In this Exploring the Science webinar, Dr. Shannon Chiu, Lead Principal Investigator of the LBDA Arizona Collaborative Research Center of Excellence , will discuss what we know about AD co-pathology in LBD, what it means for the course of the disease, and why it matters for research happening right now. Dr. Chiu will also discuss two current studies of co-pathology in LBD—the Clin-Syn biomarker study and the TRAILBLAZER-ALZ 7 clinical trial—and why you may want to consider participating. At the end of the webinar, you will be able to: Understand co-pathology in LBD: What is co-pathology? How common is it for people with LBD to also have Alzheimer's pathology in their brains? Recognize what co-pathology means for the clinical course: How does AD co-pathology affect the symptoms and progression of LBD? Does it differ between dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD)? What should people with LBD and their care partners know about what to expect? Learn more about participating in research and clinical trials: What are researchers learning about co-pathology in LBD, and what questions remain? What are the Clin-Syn study and the TRAILBLAZER-ALZ 7 clinical trial, and why might people with LBD consider volunteering? About Shannon Y. Chiu, MD, MSc Dr. Shannon Y. Chiu is a neurologist and Assistant Professor in the Department of Neurology at the Mayo Clinic College of Medicine, based in Phoenix, Arizona, where she serves as the lead principal investigator at the LBDA Arizona Collaborative Research Center of Excellence (RCOE). She specializes in movement disorders, with particular expertise in Parkinson's disease, Lewy body dementia, atypical parkinsonism, tremor, and deep brain stimulation. Dr. Chiu earned her MD from New York University School of Medicine in 2014 and completed her neurology residency at Mayo Clinic Rochester before pursuing a movement disorders fellowship at the University of Florida. Her research focuses on biomarker development in Lewy body disease, including a five-year NIH-funded grant investigating changes in Lewy body dementia using diffusion-weighted MRI and task-based EEG. She is actively engaged in professional leadership roles, serving on the Clinical Management Best Practices Committee of the Lewy Body Dementia Association and the Biomarkers Working Group of the Parkinson Study Group. In 2025, Dr. Chiu received the Jon Stolk Award in Movement Disorders for Early Career Investigators from the American Academy of Neurology, recognizing her contributions to the field. For questions or more information, please email [email protected] .

September 26, 2026 @ 10:00 AM - 6:00 PM EDT|Lake Macbride, Opie Boat Ramp

Registration fees: $480 — 10–12 people per team $360 — 7–9 people per team $240 — 3–6 people per team $80 — 2 people per team Join us for TRI for Lewy, a half-triathlon relay bringing people together to raise awareness and support for those affected by Lewy body dementia (LBD). Inspired by her mother’s experience living with LBD, race director Lindsay Weinschenk created TRI for Lewy as a meaningful way for families, friends, coworkers, and community members to come together for a day of movement, connection, and purpose. Teams of two to twelve athletes will complete an out-and-back course consisting of a 0.3-mile swim, 14-mile bike ride, and 3.28-mile run. You can divide the course based on your abilities and experience. Kayaks may be used in place of swimming, and electric bikes are welcome. Open to all athletic abilities, TRI for Lewy gives you the flexibility to complete the course at your own pace while raising awareness and supporting the LBD community. For course information, registration, or volunteer opportunities, please visit runsignup.com/Race/IA/Solon/TRIForLewy . Want to represent TRI for Lewy beyond the course? Visit the TRI for Lewy Apparel & Merchandise Shop to find additional event apparel and merchandise.

September 27, 2026 @ 10:00 AM EDT|Warwick Township Community Park

Together, We Walk Lewy Body Dementia Awareness Forward The 13 th Annual Lewy Body Dementia Awareness Walk returns on Sunday, September 27, bringing together individuals, families, care partners, advocates, and supporters united by a common goal: creating a better future for those affected by Lewy body dementia (LBD). Every registration, donation, and shared story helps raise awareness of one of the most misdiagnosed forms of dementia while advancing education, research, and compassionate support for families navigating life with Lewy body dementia. Join us in person in Jamison, Pennsylvania, or participate virtually from wherever you are. Whether you walk in honor, in memory, or in support, every step helps strengthen a growing community committed to ensuring no one faces LBD alone. Walk with us. Share your story. Help move awareness, support, and hope forward. For questions or more information, please email Tamara Brown, [email protected] . In-person registration: https://warwickpa.myrec.com/info/activities/program_details.aspx?ProgramID=29867 Virtual registration: https://secure.frontstream.com/13th-annual-lbd-walk-for-awareness