November 7, 2026 @ 11:00 AM - 7:30 PM EST|Cleveland Clinic Lou Ruvo Center for Brain Health

The Lewy Body Dementia Association’s (LBDA) 2026 Community Conference Series brings together experts, trusted partners and the Lewy body dementia (LBD) community for a day of education, empowerment and support. Join us for Living Well with Lewy: A Day of Learning, Connection and Hope , on Saturday, November 7, for this educational and inspiring event with options to attend in person or virtually. With presentations from leading clinicians, researchers and subject matter experts from LBDA, Cleveland Clinic, and LBDA Research Centers of Excellence at the University of Florida and University of Washington, this community conference will focus on advancing your understanding of the symptoms of LBD, provide practical approaches and techniques to navigate cognitive, emotional and visual changes that occur, preparing for palliative care, supporting the needs of LBD care partners, integrating activities into daily life to create meaningful experiences and enhance quality of life and keynote address by Angela Lunde, MA. Living Well with Lewy: A Day of Learning, Connection and Hope is presented by the Lewy Body Dementia Association in collaboration with Cleveland Clinic Lou Ruvo Center for Brain Health. This conference is free and open to the public. For more information, please email your questions to: [email protected] Registration : https://events.clevelandclinic.org/detail-page.php?event=21991 Registration Fee: In person: $20 per person, $30 with one (1) guest Online: Free Registration Deadline: November 1, 2026

November 7, 2026 @ 5:30 PM EST

Join the Lewy body dementia (LBD) community on November 7 in Jupiter, FL, for the Memory Forward Glow Run 5K and 1-Mile Fun Run/Walk, a student-led evening of movement, hope and support for families affected by LBD. This event is inspired by a beloved grandfather who spent much of his life running 5Ks, half-marathons, and marathons. After LBD made it impossible for him to run as he once did, this event became a way to keep moving forward in his honor—and in honor of every person and family facing this disease. There is a place for everyone. Race for a personal best, walk with family and friends, or simply come out to support the cause. Every step helps raise awareness and support the Lewy Body Dementia Association’s (LBDA) work to improve care, provide education and compassionate support, and advance research toward earlier diagnosis and better treatments. Wear your brightest colors, glow accessories, and light-up gear as we light the course together. For questions or more information, please contact Haisten Carroll at [email protected] .

November 17, 2026 @ 12:00 PM EST

Unlike some other dementias, Lewy body dementia (LBD) does not have clearly defined stages, making it difficult for individuals and families to know what to expect or how to plan ahead. Symptoms may shift from day to day—or even hour to hour—with changes in thinking, attention, movement, sleep, mood, and perception that can feel unpredictable and hard to interpret. In this Thriving Day to Day webinar, Lucille Carriere, PhD and Dylan Wint, MD will discuss why LBD progression is better understood as a pattern of changing needs rather than a step-by-step stage model. You will learn how to recognize meaningful changes, communicate with healthcare providers, adapt care routines, and stay grounded while planning for an uncertain and fluctuating journey. At the end of the webinar, you will be able to: Explain why LBD is not typically described in fixed stages and how symptom fluctuations can complicate expectations for progression. Identify changes in cognition, movement, sleep, mood, and perception that may signal evolving care needs for a person living with LBD. Apply practical strategies for planning and adapting care when symptoms are variable, progression is uncertain and needs change over time. About Lucille Carriere, PhD Dr. Carriere is a staff clinical psychologist and section head for behavioral health services with the Cleveland Clinic Lou Ruvo Center for Brain Health. She also holds the Angie Ruvo Endowed Chair for Family Caregiving and is responsible for leading psychosocial and interdisciplinary programming for patients and families affected by neurodegenerative diseases. Dr. Carriere also directs the Center’s counseling, music therapy, and social work programs. She provides counseling and behavioral sleep medicine services to patients and families. Dr. Carriere completed her fellowship in health psychology at Cleveland Clinic’s Mellen Center for Multiple Sclerosis. She currently serves as faculty for the Parkinson’s Disease Foundation’s interprofessional educational program. About Dylan Wint, MD Dylan Wint, MD joined Cleveland Clinic Lou Ruvo Center for Brain Health Nevada in May 2010. His clinical interests revolve around optimizing the diagnosis and management of neurodegenerative conditions. Dr. Wint earned his undergraduate and medical degrees at Stanford University and the University of Miami. He completed simultaneous residencies in Neurology and Psychiatry at the University of Florida and became the University's first movement disorders fellow. He then trained in multimodal neuroimaging research at the National Institutes of Health and was on the faculty at Emory University before joining Cleveland Clinic. For questions or more information, please email [email protected] .