Bridging the Gap: Ensuring Palliative Care for Lewy Body Dementia Through Advocacy and Support

The primary goal of palliative care is to enhance the quality of life for both people living with an illness and their families. This involves addressing physical, emotional, and spiritual needs, ensuring that people live as well as possible despite their illness.  

Palliative care provides comprehensive support that includes medical treatment, emotional support, and guidance for families. This holistic approach helps families navigate the complexities of Lewy body dementia (LBD) and make informed decisions about care. Overall, palliative care plays a vital role in managing the multifaceted challenges of LBD, providing individuals and their families with the support they need to navigate this difficult journey.  

Join us for an insightful and empowering webinar presented by Dr. Kevin Webb-Kay, designed to support people with LBD and their care partners in advocating for and accessing palliative care services. This session will provide valuable information and practical strategies to help you navigate the complexities of LBD and improve quality of life through palliative care.  

This webinar is a must-attend for anyone affected, offering hope, guidance, and a sense of community. Don’t miss this opportunity to empower yourself and your loved ones with the knowledge and tools to champion palliative care access.   

Key Takeaways:  

1. Understanding Palliative Care: Learn what palliative care is, its benefits, and how it differs from other types of care.
2. Advocacy Strategies: Discover effective ways to advocate for palliative care services within healthcare systems and communities.
3. Communication Skills: Gain tips on how to communicate your needs and preferences to healthcare providers.
4. Support Networks: Explore the importance of building a strong support network and how to connect with local and national resources.  

About Dr. Kevin Webb-Kay 

Dr. Kevin Webb-Kay specializes in palliative care and neurodegenerative diseases, with particular expertise in Parkinson’s disease and Lewy body dementia. He established and leads a specialized clinic for palliative care in Parkinson’s disease and related disorders. He provides neuropalliative care education through the Parkinson’s Foundation, the Lewy Body Dementia Association, and the University of Minnesota. Beyond his specialized neurodegenerative disease clinic, he practices both general inpatient palliative care and outpatient neurology. Dr. Webb-Kay believes that patients and families affected by neurodegenerative disease deserve high quality palliative care and works to find opportunities and systems that can deliver it. 

Registration Link:  https://events.zoom.us/ev/Agmh4C0BPUF9bdTvZJYB0uH7YME2yXBz-S7uQ8pzZS88IpYREMHi~AnX-UfRh8X34FYplZzBTU9PmehokK010Imz5358TGYBYnAZHhrXxWdUrVw 

For questions or more information, please contact Rose Heithoff, Education Coordinator, at rheithoff@lbda.org.