November 3, 2025

In recognition of National Family Caregivers Month we are spotlighting research studies for care partners. If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies. In fact, the care partner is such an important source of information that many studies actually require a care partner to participate in addition to the person living with Lewy.

But did you know that there are many studies that are focused on the care partner rather than on the person living with Lewy? In these kinds of studies, researchers examine the caregiving experience and try to find ways to improve quality of life for the care partner and the person living with Lewy.

In many cases, these studies can be completed from the comfort of your own home. Often, you can connect with the study team via video conferencing rather than visiting a clinic.

A few examples of this kind of study include:

• The Lewy body dementia Caregiver Study is gathering information about day-to-day stressors associated with LBD caregiving, with an eye toward future development of strategies to reduce their impact on quality of life.
• The I-Care-Rural pilot study is evaluating an app for rural care partners with the goal of reducing care partner stress and improving certain symptoms of the person living with Lewy.
• The Caregiver Bootcamp study is testing a prototype educational program for family and friends of people who have been recently diagnosed with dementia.
• The LEAD study is trialing a guided tool designed to improve advance care planning by people living with Lewy and their care partners by focusing on communication and the development of mutual understanding.
• The FinLe study is developing a web-based tool that may help people with dementia and their care partners accomplish personalized financial management and legal planning.
• The CareEx study is focused on learning more about extended family care partners, such as grandchildren, siblings, nieces/nephews and step-kin.
• The PERSEVERE study is testing an educational program for family care partners of people living with Lewy.

You can see more information about these and other studies – either for care partners or for people living with Lewy – you can always visit the LBDA clinical trials page, which contains information on currently recruiting studies.

New studies launch frequently. To be kept up to date by email when new studies launch that match your characteristics and interests, consider signing up for the Lewy Trial Tracker.