Swallowing difficulties, also known as dysphagia, are common in people living with dementia and can create additional challenges for family caregivers. Researchers are studying how eating and swallowing changes in people living with dementia affect caregivers over time, including their experiences, burden, and support needs.
What is this study about?
Researchers at the University of Oregon are studying how swallowing-related challenges influence caregiver experiences, stress, confidence, and support needs as dementia progresses. The findings may help improve caregiver education and inform future programs designed to support families affected by dementia.
What is involved?
Participants will:
- Complete four surveys, online or by telephone with a member of the research team, over approximately 15 months, with one survey every five months (approximately 30-60 minutes each).
Participants may receive up to $45 for completing all four surveys.
All study activities are completed remotely.
Who can participate?
You are eligible to participate if you:
- Are 18 years of age or older.
- Providing unpaid care or support to a family member living with dementia.
Note: Participants may join even if the person with dementia does not currently have swallowing difficulties.
Study Site
| State | City | Site Name | Contact |
|---|---|---|---|
| Online | University of Oregon | Samantha Shune |
Study Funder/Sponsor
This study is funded by the Alzheimer's Association.
Contact Information
For study questions or to volunteer, please contact:
Samantha Shune
Email: [email protected]
Phone: (541) 346-7494
