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Lewy body dementia: Information for Patients, Families, and Professionals

Lewy body dementia (LBD) is a complex, challenging, and surprisingly common brain disease. Although lesser known than its “cousins” Alzheimer’s disease and Parkinson’s disease, LBD is not a rare disorder. More than 1 million Americans are affected by its disabling changes in the ability to think and move. This 40-page booklet helps people with LBD, their families, and professionals learn more about the disease and resources for coping.

This booklet on LBD was a collaboration between the Lewy Body Dementia Association, the Shiley-Marcos Alzheimer’s Disease Research Center at the University of California, San Diego, the National Institute on Aging, and the National Institute of Neurological Disorders and Stroke.

Print copies of this publication can be ordered online from the National Institute on Aging’s Alzheimer’s Disease Education and Referral Center or by calling toll-free 1-800-438-4380.

To download a PDF of this publication, click here.

Lewy body dementia: Information for Patients, Families, and Professionals

Learn about LBD

Educational resources to assist individuals with LBD, their families and healthcare providers.

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Education & Support

Find the the latest information and research to increase awareness and understanding of LBD.

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Webinars

LBDA's 2026 Community Webinar Series, Insights, Innovations & Everyday Impact, features a free, montly webinar to help you live optimally with Lewy.

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Lewy Publications

Information for patients, families and professionals.

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