Stories – Page 8 – Lewy Body Dementia Association

Mom

My mother began to lose the core of herself during the last year of her life. I noticed this when she stopped reading, couldn’t write her Haiku anymore, couldn’t balance […]

Forever Changed

August 2014, will mark one year that our lives changed forever. Little did I know that my dad was about to be diagnosed with the evilest disease I’ve ever witnessed. […]

My hubby and Lewy Bodies

My hubby and Lewy Body Mike was told he had FTD about 7 years ago along with AD, however, we went to a specialist 2 years ago that said he […]

Dad’s Dementia Journey

It’s been years since my father passed away but I still remember the day I saw the words Lewy body. A few weeks ago I received an email from the […]

The Trick Disease

This may be as close as I get to writing that book on caregiving I always said I would do. It was only after my Mother passed away that I […]

Love Remembers

She lost her husband in 2009. Things started to change shortly after. She lost her job, she wasn’t doing well in her new school, and she kinda just started acting […]

All Too Familiar

This terrible disease was all too familiar to my family and I. Almost two years ago, my mother, who was only newly 52 at the time, was diagnosed with LBD. […]

Cats, Babies and Other Dimensions

As my mom lay dying in her hospice room, a little kitty curled up at her feet, leaving a warm spot at the bottom of the bed. I had never […]

Veteran With PTSD and LBD Denied Admittance 32 Times

February 16, 2016 Patient Name & Veteran: Ronald Lee Davis To whom it may concern, We recently had a horrifying experience trying to obtain medical care for my husband, Ronald […]

Jean’s Story

Now, looking back in time, a seemingly simple little expression from Norm, our son-in-law, might have been the first signpost we encountered in our long and difficult roller coaster ride […]

Our Horrible Journey

It was a terrible, horrific, awful time. I don’t know how we lived through it and I NEVER want to go through anything like it again. God had to have […]

In Memory of Ruth

After six frustrating months and four doctors we finally found a doctor at Penn Medicine in Philadelphia, who we were told was one of the leading doctors in dementia. I […]

Biking Across the United States with LBD

My partner John has been diagnosed with LBD for two and a half years, and before that with mild cognitive impairment (MCI) for almost three years. In January of 2016, […]

Enlightenment

No, thank you, is my response to LBD. However, some choices are out of our control. You don’t even know that the battle is upon you until the invasion is […]

Tuesdays with John

Many of us have either read or heard of the book, Tuesdays with Morrie, by Mitch Albom. He wrote of his weekly visit with his college professor who was dying […]

The Dementia Few People Know About

The Times-Standard published a story about Barbara and Sam Kadlecik called “GRAY MATTERS: The dementia few people know about” written by Carol Harrison. This story was part of Barbara’s efforts […]

Spouse

I am sitting here alone in my room and have just read Teresa Thompson’s very sad story that is almost a copy of what I am living.. In 2007, my […]

When did it all start?

I still look back to try and figure out a timeframe of the progression and why I wasn’t able to see something was wrong sooner. In November of 2007, Frank […]

Where Did He Go?

My father passed away on Dec. 6, 2014, of sepsis that we didn’t know was happening – because he never complained. We first noticed signs that seemed to veer away […]

My angel

My mother was diagnosed with LBD in 2011 after having been first misdiagnosed with Parkinson’s. She first had issues with balancing her checkbook and eye problems both that we thought […]