LBDA

December 2016 Newsletter

 

A FATHER AND SON JOURNEY

My father was only 50 years old when he was diagnosed with Lewy body dementia. He shared such amazing passions that I have grown to love.  Unfortunately, he'll never meet the loves of my life...my wife and children.  He won't know I climbed Mount Everest all in awareness for what he is going through. 

It's been a very emotional journey that do not want to see another family go through.  I'm doing all I can to raise funds and awareness with the Lewy Body Dementia Association. Read more.

 

Giving is Easy with Amazon

Did Santa not bring that one important gift? There is still time!  As 2016 draws to a close LBDA and Amazon have teamed up this season. Amazon still has amazing deals in several popular categories including electronics, toys, fashion, home, sports, baby, and more. When shoppers purchase items on Amazon at smile.amazon.com  it will generate donations for Lewy Body Dementia Association.  This is a great way to put your shopping to work: #StartWithaSmile at smile.amazon.com 

 

Resources Available to Help with Diagnosis

LBDA has developed a Diagnostic Symptoms Checklist  to foster earlier LBD diagnosis.  It helps to quickly and easily identify symptoms to be reviewed with the doctor. 

 

Local LBDA Support Groups

Support groups provide the opportunity to educate, encourage, and connect with a community and each other. Find a local LBDA Support Group near you, or contact LBDA to start one in your community at support@lbda.org

 

Be an Engaged LBD Caregiver

No matter how you slice it, being an LBD caregiver is a big job. In "Be An Engaged LBD Caregiver", Pat Snyder shares four suggestions from her caregiving experiences to help you cope throughout your LBD journey. Learn more

 

Find a Clinical Trial

It’s an exciting time in LBD research with new drug studies under way. Before joining a study, LBDA encourages you to educate yourself about clinical trials.  Visit our new Clinical Trials webpage today.

 

The 21st Century Cures Act Becomes Law

Exciting news out of Washington D.C this month when President Obama turned a critical healthcare legislation into law. The 21st Century Cures Act will expedite the Food and Drug Administration's (FDA) review and authorization drugs and medical devices. It also provides vital funding for initiatives such as dementia research, Vice President Biden's "Cancer Moonshot, and the Precision Medicine Initiative. In addition and of utmost importance in LBD, the Centers for Disease Control (CDC) is now mandated to create a new database helping to track and understand prevalent neurodegenerative diseases like LBD. 

The Lewy Body Dementia Association applauds the passage of the 21st Century Cures Act and the increased funding it brings to the FDA and CDC.
 

There are four actions you can take to be an engaged Lewy body dementia (LBD) caregiver.