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living with LBD: the firsthand
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Read featured essays on caregiving, submit a personal LBD story for possible inclusion in our website, newsletter or other publications, and know that you are not alone! .
by Barbara McGraw
by Don Kent
by Peggy Bushy
My recent ‘bucket list’ trip to Europe, a quest planned by my three daughters after my diagnosis late last year of Lewy body dementia, brought with it three revelations about me and my...
My 81 years old (and 11 months) dad lost his battle with LBD on 2/28/17. We all know what a horrific disease it is and what it can do. He was robbed of so many things. We read how fast the end...
Watched you fall a part each night
Cried because I needed you back
The voices would not leave you alone
Body shook as disease slowly attacked
Lewy lean weighted down your neck
Shuffled gate body...
Sometimes the most fascinating people in the world to listen to are the ones who struggle to speak at all, whose body is crumbling, cheating itself of its once natural vigor and vitality, making...
My husband, Ken, was diagnosed with Lewy body dementia four years ago. He was highly educated and 60 years old. We had been together for over 10 years, having met when we were both going through...
Today would have been my grandma's 87th birthday. Gardenia buds all over the east coast, tight in their glossy green cocoons, tell that it's that time of year again. Soon they'll blossom...