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Understanding LBD

This publication provides helpful information to LBD families about medications used to treat cognitive, motor, mood or behavioral disorders. This information may be helpful in discussing with healthcare providers the risks and benefits of certain medications.

This 40-page booklet helps people with LBD, their families, and professionals learn more about the disease and resources for coping. It was a collaboration between the Lewy Body Dementia Association, the Shiley-Marcos Alzheimer’s Disease Research Center at the University of California, San Diego, the National Institute on Aging and National Institute of Neurological Disorders and Stroke.

LBDA has created a helpful comprehensive checklist to help people diagnosed with LBD or their caregivers report new or concerning LBD symptoms to their physician.

LBDA has developed a tool to help patients, caregivers and healthcare providers quickly and easily identify symptoms that are required for diagnosis of dementia with Lewy bodies (DLB), the most misdiagnosed form of dementia and one form of LBD.

This paper discusses some of the causes of behavioral symptoms in LBD, as well as strategies and treatments to reduce their frequency and severity.

Includes definitions for LBD-related medical terminology, classes of medicines and caregiving terms, plus services and resources helpful in LBD caregiving.

This publication addresses caregiver questions submitted after a webinar on LBD research and provides answers to some frequently asked caregiver questions. 

Everyone should know these 10 things about Lewy body dementias.

This Medical Alert Wallet Card has been developed to quickly inform Emergency Room medical professionals of important medication sensitivites in LBD.

An Introduction to Lewy Body Dementia provides easy-to-read clinical information on Lewy body dementia in a patient friendly manner.