Press Releases

The second most common cause of progressive dementia, yet the most misdiagnosed

ATLANTA (AUGUST 7, 2014)— Lewy body dementia (LBD) is the most misdiagnosed form of dementia, taking on average more than 18 months and three doctors to receive a correct diagnosis. Even though it is second only to Alzheimer’s disease as the most common cause of progressive dementia, affecting 1.3 million Americans, the symptoms of LBD are not well recognized by many physicians, especially primary care physicians and other general practitioners. Unfortunately, then, most people are not diagnosed until they are at moderate or severe states, leaving their caregivers unprepared and the patient vulnerable to potentially deadly medication side effects.

LBDA Offers Answers and Support for One of the Most Debilitating Dementias

ATLANTA (JULY 21, 2014)—“I watched my husband experience a decline in cognition followed by a period of what seemed like improved function only to plunge again into confusion with more frequent hallucinations,” says one caregiver newly acquainted with Lewy body dementia (LBD).  According to the Lewy Body Dementia Association (LBDA), these ups and downs in function are sometimes refer to by family caregivers as the “roller-coaster effect” of LBD.  Fluctuating levels of cognitive ability, attention and alertness are one of the core features of LBD. 

 The Difference in Diagnosis May Mean Life or Death 

ATLANTA (JULY 7, 2014)—Today, the Lewy Body Dementia Association (LBDA) highlights the importance of an accurate Lewy body dementia diagnosis, which may have life-saving implications.  Affecting more than 1.3 million Americans, Lewy body dementia (LBD) is the most misdiagnosed form of dementia and, following Alzheimer’s disease, is the second most common cause of progressive dementia.   LBD is associated with abnormal protein deposits in the brain, called Lewy bodies, that affect thinking, movement, behavior and mood.  It’s difficult to diagnose LBD, because its early symptoms resemble those found in Alzheimer’s and Parkinson’s disease.

 Legendary Radio Personality Was Diagnosed With LBD 

ATLANTA (JUNE 18, 2014)—The sad news of Casey Kasem’s illness and passing has brought unexpected visibility to a disease unfamiliar to many people. The Lewy Body Dementia Association offers its condolences to the family and friends of Casey Kasem.  Mr. Kasem had been suffering from Lewy body dementia (LBD), one of the most debilitating forms of dementia. LBD affects 1.3 million Americans.