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Press Releases

“Dementia Feared More Than Cancer”

ATLANTA (MAY 19, 2014)—Today, the Lewy Body Dementia Association (LBDA) tells Americans DON’T FORGET to PAY IT FORWARD THIS MAY FOR MEMORY’S SAKE—with one click of the mouse anyone can help halt the rising tide of dementia.  A small gift can make a big difference. 

LBDA Answers the Question: What is Lewy Body Dementia?

ATLANTA (MAY 16, 2014)—Casey Kasem’s heartbreaking diagnosis of Lewy body dementia is all over the news.  The Associated Press reports Kasem, 82, had previously been incorrectly diagnosed as having an advanced form of Parkinson's disease. But what is Lewy body dementia and why might it misdiagnosed as Parkinson's or Alzheimer's disease? 

TO HEROIC MOM-PARTNER-CAREGIVERS OF PEOPLE WITH LBD

Tenacity, Love, and Self-Sacrifice… 

Patience and Kindness and All That’s Nice—

That’s the Stuff that Heroines Are Made Of

ATLANTA (MAY 5, 2014)—Today, the Lewy Body Dementia Association (LBDA) announces, as an extension of its Lewy Who? awareness campaign, a month-long salute to and continued support for Mom-Partner-Caregivers of family members with Lewy body dementia.  Affecting more than 1.3 million Americans, Lewy body dementia (LBD) is the most misdiagnosed form of dementia and, following Alzheimer’s disease, is the second most common cause of progressive dementia.   So, why recognize moms?  Because LBD is slightly more common in men than women, compared to Alzheimer’s disease, which is more common in women than men.  And, typically, the spouse or an adult daughter becomes the primary caregiver—a survey of LBD caregivers by LBDA revealed that 88 percent of respondents were women.  

“We’re Knocking on Cyber Doors to Save Lives”

 

ATLANTA (April 14, 2014)—Today, if you hear, “Knock, knock,” on your cyber door, be sure to answer, “Who’s there?”  You’ll hear Whoopi Goldberg say, “Lewy.“  To which you respond, of course, “Lewy who?”  Glad you asked.  The Lewy Body Dementia Association (LBDA) launched this month an awareness campaign – “Lewy Who?” – to educate the public about Lewy body dementia (LBD), the most misdiagnosed form of dementia and, following Alzheimer’s disease, the second most common cause of progressive dementia.  

Whoopi Calls for Clicks from Bloggers, Reporters, Writers and Individuals Everywhere to Share Potentially Lifesaving Information about LBD 

ATLANTA (APRIL 7, 2014)—“Hey, it’s Whoopi!”  Whoopi Goldberg, you ask?  The Oscar-winning actress who starred in The Color Purple with Oprah Winfrey and in Ghost with Patrick Swayze and who stole our hearts in the Sister Act? Yes, that Whoopi Goldberg!  With the same Whoopi passion she brings to the big screen, today, Whoopi delivers a serious new message on video for families concerned about loved ones with memory loss or confusion and movement, behavior and sleep problems.  Together with the Lewy Body Dementia Association (LBDA), Whoopi “calls for clicks”— with one click of the mouse, in just one or two minutes, right now, you may help someone for a lifetime.

Atlanta, GA, April 1, 2014 — The Lewy Body Dementia Association (LBDA) has announced the launch of a major national advertising, public relations, and social media campaign entitled, “Lewy Who?”  The purpose of this initiative is to raise awareness of Lewy body dementia in the general public and healthcare domains. 

IMMEDIATE RELEASE                                           

FAMILIES LEARN ALZHEIMER’S-LIKE SYMPTOMS MAY NOT BE ALZHEIMER’S

Caregiver Sketches Unveil the Shroud Over Lewy Body Dementia

ATLANTA (March 12, 2014)—“You don’t even know the battle is upon you, until the invasion is well underway,” says Ms. J, caregiver for a person with dementia.  Ms. J is just one of many caregivers who learn that debilitating symptoms begin to take their toll on loved ones before they even discover their diagnosis.   More than 5 million Americans suffer from Alzheimer’s disease, the most common form of degenerative dementia.   Parkinson’s disease, a movement disorder, affects 1 million Americans.  

A Critically Different Diagnosis:

LBD, the Second Most Common Progressive Dementia after Alzheimer’s 

ATLANTA (March 10, 2014)—Today, in recognition of Brain Awareness Week, from March 10 through March 16, 2014, the Lewy Body Dementia Association (LBDA) calls attention to critical differences in dementia-causing disorders that may have potentially life-saving implications. 

Atlanta, GA, February 10, 2014 — The Lewy Body Dementia Assocation (LBDA) has announced Joy Walker of Seattle, WA as the recipient of the 2013 Volunteer of the Year award.  Walker is a writer, hospice worker and bereavement counselor who also worked as a professional care manager for her father who was diagnosed with lewy body dementia (LBD).

12/12/13 - A new informational booklet on Lewy body dementias has been published by the National Institutes of Health for people living with LBD, their families and healthcare providers.