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Press Releases

The second most common cause of progressive dementia, yet the most misdiagnosed

ATLANTA (AUGUST 19, 2014)—Today, the Lewy Body Dementia Association (LBDA) steps up its awareness and fundraising effort “Lewy Who?” to put the brakes on Lewy body dementia (LBD). With symptoms that resemble both Alzheimer’s and Parkinson’s disease, LBD is the most misdiagnosed form of dementia. Yet, following Alzheimer’s disease, it is the second most common cause of progressive dementia, affecting 1.3 million Americans. Families can fight this debilitating disease while educating others about LBD. LBDA offers five (5) ways to fight: (1) donate, (2) employer matching gifts, (3) plan a community event, (4) volunteer, or (5) partner with LBDA.

The second most common cause of progressive dementia, yet the most misdiagnosed

ATLANTA (AUGUST 7, 2014)— Lewy body dementia (LBD) is the most misdiagnosed form of dementia, taking on average more than 18 months and three doctors to receive a correct diagnosis. Even though it is second only to Alzheimer’s disease as the most common cause of progressive dementia, affecting 1.3 million Americans, the symptoms of LBD are not well recognized by many physicians, especially primary care physicians and other general practitioners. Unfortunately, then, most people are not diagnosed until they are at moderate or severe states, leaving their caregivers unprepared and the patient vulnerable to potentially deadly medication side effects.

LBDA Offers Answers and Support for One of the Most Debilitating Dementias

ATLANTA (JULY 21, 2014)—“I watched my husband experience a decline in cognition followed by a period of what seemed like improved function only to plunge again into confusion with more frequent hallucinations,” says one caregiver newly acquainted with Lewy body dementia (LBD).  According to the Lewy Body Dementia Association (LBDA), these ups and downs in function are sometimes refer to by family caregivers as the “roller-coaster effect” of LBD.  Fluctuating levels of cognitive ability, attention and alertness are one of the core features of LBD. 

 The Difference in Diagnosis May Mean Life or Death 

ATLANTA (JULY 7, 2014)—Today, the Lewy Body Dementia Association (LBDA) highlights the importance of an accurate Lewy body dementia diagnosis, which may have life-saving implications.  Affecting more than 1.3 million Americans, Lewy body dementia (LBD) is the most misdiagnosed form of dementia and, following Alzheimer’s disease, is the second most common cause of progressive dementia.   LBD is associated with abnormal protein deposits in the brain, called Lewy bodies, that affect thinking, movement, behavior and mood.  It’s difficult to diagnose LBD, because its early symptoms resemble those found in Alzheimer’s and Parkinson’s disease.

 Legendary Radio Personality Was Diagnosed With LBD 

ATLANTA (JUNE 18, 2014)—The sad news of Casey Kasem’s illness and passing has brought unexpected visibility to a disease unfamiliar to many people. The Lewy Body Dementia Association offers its condolences to the family and friends of Casey Kasem.  Mr. Kasem had been suffering from Lewy body dementia (LBD), one of the most debilitating forms of dementia. LBD affects 1.3 million Americans. 

Can Men Prevent Cognitive Decline or Improve Cognitive Function?

ATLANTA (JUNE 11, 2014)—The Lewy Body Dementia Association (LBDA) asks men to “rethink” men’s health this week with a focus on mental fitness as well as physical fitness.  June 9 through 15, 2014, is Men’s Health Week.  With age as a known risk factor for dementia and with a growing population of those ages 65 years and older that’s expected to double from more than 36 million (2004) to more than 71 million by 2030, LBDA discusses men, Lewy body dementia (LBD), and cognitive function. 

ATLANTA (JUNE 6, 2014)—Today, the Lewy Body Dementia Association (LBDA), remembers dads with dementia and their caregivers with “Indelible Memories and Unforgettable Moments,” an open tribute to families across America struggling with Lewy body dementia (LBD), Alzheimer’s disease, Parkinson’s disease and nearly 100 other types of dementias. 

“Dementia Feared More Than Cancer”

ATLANTA (MAY 19, 2014)—Today, the Lewy Body Dementia Association (LBDA) tells Americans DON’T FORGET to PAY IT FORWARD THIS MAY FOR MEMORY’S SAKE—with one click of the mouse anyone can help halt the rising tide of dementia.  A small gift can make a big difference. 

LBDA Answers the Question: What is Lewy Body Dementia?

ATLANTA (MAY 16, 2014)—Casey Kasem’s heartbreaking diagnosis of Lewy body dementia is all over the news.  The Associated Press reports Kasem, 82, had previously been incorrectly diagnosed as having an advanced form of Parkinson's disease. But what is Lewy body dementia and why might it misdiagnosed as Parkinson's or Alzheimer's disease? 

TO HEROIC MOM-PARTNER-CAREGIVERS OF PEOPLE WITH LBD

Tenacity, Love, and Self-Sacrifice… 

Patience and Kindness and All That’s Nice—

That’s the Stuff that Heroines Are Made Of

ATLANTA (MAY 5, 2014)—Today, the Lewy Body Dementia Association (LBDA) announces, as an extension of its Lewy Who? awareness campaign, a month-long salute to and continued support for Mom-Partner-Caregivers of family members with Lewy body dementia.  Affecting more than 1.3 million Americans, Lewy body dementia (LBD) is the most misdiagnosed form of dementia and, following Alzheimer’s disease, is the second most common cause of progressive dementia.   So, why recognize moms?  Because LBD is slightly more common in men than women, compared to Alzheimer’s disease, which is more common in women than men.  And, typically, the spouse or an adult daughter becomes the primary caregiver—a survey of LBD caregivers by LBDA revealed that 88 percent of respondents were women.