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More Caregiver Resources

General

AARP - offers a site with commentary, video, and other resources on caregiving from Gail Sheehy, author of Passages and other subsequent best-selling books on aging and caregiving.

Administration on Aging - is a federally funded site with information about caregiving, working with and providing services to people with dementia, and where to look for support and assistance. 

Age With Confidence - offers free weekly audio podcasts on legal, medical, and other issues related to aging.

AgingCare.com - connecting people caring for elderly parents. A web site with an extensive list of caregiver support topics, caregiver forums, eldercare information, as well as money and legal issues.

Alzheimer’s Disease Education and Referral Center (ADEAR) - Current, comprehensive information and resources on dementia from the National Institute on Aging (NIA).

American Academy of Neurology (Patient site) - Has a searchable database to help find a neurologist.  Includes filters for key sub-specialties like dementia and movement disorders.

Caregiver.com - the Web site of Today's Caregiver, offering links to a broad range of practical caregiving resources.

Caregiver Guide - a comprehensive manual published by the National Institute on Aging especially valuable for new caregivers.

Caregiving.com - a resource created by caregivers for caregivers, offering practical information, easy-to-use tools, and personal support to caregivers.

Caring.com - offers advice from trusted experts in geriatric medicine, legal matters, finances, housing, and family issues, as well as community support from other caregivers.

Dementia Care Central - offers information on coping with common problems in dementia, managing financial and legal issues, providing hands-on care, finding short- and long-term care and living options, and caring for the caregiver.

Eldercare Locator - is a nationwide directory assistance service helping older people and their caregivers locate local support and resources. It is funded by the U.S. Administration on Aging.

Family Caregiver Alliance - The National Center on Caregiving - offers programs at national, state, and local levels to support and sustain caregivers.

Help Starts Here - features online directories to help jump start your search for the right therapist. These sites list thousands of clinical social workers, psychologists, psychiatrists and other licensed mental health professionals.

Long Distance Caregiving, by the National Institute on Aging - The booklet is organized in a question/answer format. Each of the 20 commonly asked questions has a brief, stand–alone answer. There’s also a resource list at the end that can help you find more information.

National Association of Professional Geriatric Care Managers - a membership organization of 2,000 geriatric care managers (health and human service specialists who act as a guide and advocate for families who are caring for older relatives or disabled adults). Members must meet stringent education, experience and certification requirements.

National Family Caregivers Association - educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness, disability, or the frailties of old age. The association reaches across the boundaries of diagnoses, relationships, and life stages to help transform family caregivers' lives by removing barriers to health and well being.

National Institute on Aging – NIA leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life and is the primary Federal agency supporting and conducting Alzheimer's disease research. Provides a wealth of educational content on aging issues.

National Institute on Neurological Disorders and Stroke – NINDS supports and conducts basic, translational, and clinical research on the normal and diseased nervous system. The Institute also fosters the training of researchers and seeks better understanding, diagnosis, treatment, and prevention of neurological disorders. Provides overviews on a wide variety of neurological disorders.

Senior Living Map – Map-based search tool for senior and assisted living.

VA Special Pensions – Educational resource on benefits available to wartime veterans and their spouses through the Veteran’s Administration.

End-of-Life

Planning for the end of life can be a valuable activity for any family. The links below offer general guidance and some specific suggestions for families who face the burden of a disease such as Lewy body dementia.

Advanced Directives - a Caring Connections site with state-specific advanced directives.

Caring Connections - home page of consumer Web site about hospice and palliative care managed by the National Hospice and Palliative Care Organization.

Palliative Doctors - a Web site for consumers managed by the American Academy of Hospice and Palliative Care about palliative care.

Driving and Dementia

Driving safety is an important issue to be addressed when a person is diagnosed with dementia. LBDA has assembled a number of helpful resources on the topic.

For families:

NIH Senior Health – Older Drivers

Family Caregiver Alliance – Driving and Dementia

The Hartford – People with Dementia

For physicians:

Guidelines from the American Academy of Neurology help physicians and families determine when people with dementia should give up driving

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