-A +A

Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

LBDA Virtual Support Groups

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Twin Cities Metro Area Atypical Parkinson's Disease Support Group

When: Second Wednesday of every month, 1:00 p.m. – 3:00 p.m.

Who: Anyone diagnosed or caring for someone diagnosed with a Parkinson's disease spectrum disorder, including Lewy body dementia, progressive supranuclear palsy, and multiple systems atrophy.

Location: Struthers Parkinson's Center

Address: 6701 Country Club Drive Golden Valley, MN 55427

Contact:

Joan Hlas
952.993.6650
Joan.Hlas@ParkNicollet.com

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Twin Cities Metro Area Caregiver Support Group

When: Second Thursday of every month, 1 p.m. – 3 p.m.

Who: Caregivers of those living with movement disorders, including Lewy body dementia, Parkinson's disease.

Location: Struthers Parkinson's Center

Address: 6701 Country Club Drive Golden Valley, MN 55427

Contact:

Joan Hlas
952.993.6650
Joan.Hlas@ParkNicollet.com

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Twin Cities Southeast Metro Caregiver Support Group

When: Second Thursday of every month, 6:30 p.m. – 8:30 p.m.

Who: Caregivers and family members who have a loved one with Lewy body dementia, Alzheimer's disease, or any other dementia.

Location: Peaceful Mind Homes

Address: 3808 Blackhawk Ridge Place Eagan, MN 55122

Contact:

Kam Aggarwal
651.538.4499
Kam@peacefulmindhomes.com

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Parkinson and Lewy Body Dementia Support Group of Wilmington

When: Fourth Tuesday of every month, 1:30 p.m. – 3:30 p.m.

Who: For caregivers and family members of loved ones diagnosed with Parkinson’s disease and Lewy Body Dementia.

Location: Wilmington Senior Center

Address: 2222 South College Road Wilmington, NC 28483

Contact:

Sandy Wessells
910.397.0115
Herringwessells@gmail.com

Category:

General: facilitated by a caregiver/peer
Piedmont Triad Lewy Body Dementia Support Group

When: Meets the Second Monday of the month, 7:00 pm - 8:00pm

Who: For caregivers and family members of loved ones diagnosed with Lewy Body Dementia.

Location: Brighton Gardens of Greensboro

Address: 1208 New Garden Road Greensboro, NC 27410

Contact:

Anne Tubaugh
336.292.1239
LBDTriad@gmail.com

Category:

General: facilitated by a caregiver/peer
Research Triangle LBD Support Group

When: The second Thursday of each month at 10:00am

Who: Caregivers and loved ones of those diagnosed with Lewy body dementia

Location: Alzheimer's Association of NC

Address: 1305 Navaho Dr., Suite 101 Raleigh, NC 27609

Contact:

Loree Idol
919-616-2776
Idol.loree@gmail.com

Category:

General: facilitated by a caregiver/peer
Monadnock Parkinson’s Support Group

When: First Tuesday of every month, 2:00 p.m. – 4:00 pm.

Who: Anyone who has Parkinson-like symptoms or Parkinson’s disease and their caregivers.

Location: Saint James Episcopal Church’s Undercroft on the lower level

Address: 44 West Street Keene, NH 03431

Contact:

Joe Nicholas
603.352.1727
jnicholas@ne.rr.com

Category:

General: facilitated by a caregiver/peer
Albuquerque Frontal Lobe Dementias Support Group

When: First Sunday of every month, 2:00 p.m. - 5:30 p.m.

Who: For caregivers and family members of people diagnosed with any type of Frontal Lobe dementias.

Location: Contact Gretchen Crowe for details.

Address: Contact Gretchen Crowe for details. Albuquerque, NM 87111

Contact:

Gretchen Crowe
505-823-1554
ggshipley@comcast.net

Category:

General: facilitated by a caregiver/peer
Las Vegas Valley Lewy Body Dementia Support Group

When: Please contact for details.

Who: For caregivers and family members and friends of those diagnosed with Lewy Body Dementia.

Location: To be determined

Contact:

Joan Croft
702.789.8371
LewyBodySupportLasVegas@hotmail.com

Category:

General: facilitated by a caregiver/peer
Long Island Area Support Group

When: Once A Month , 7:00 p.m – 8:30 p.m.

Who: Lewy body dementia caregivers.

Location: Nassau County; call for location.

Address: Nassau County; call for location. Lynbook, NY 11563

Contact:

Norma Loeb
646.248.9292
normalanne@gmail.com

Category:

General: facilitated by a caregiver/peer