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Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

LBDA Virtual Support Groups

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Quad Cities LBD Caregivers Group

When: 2nd Thursday of each month at 7:00 p.m.

Who: Caregivers, friends and family of those diagnosed with Lewy body dementia

Location: Illini Larson Center

Address: 855 Illini Drive, Classroom A, Lower Level Silvis, IL 61282

Contact:

Paul Smith
563-340-2137
qclbdcaregivers@yahoo.com

Category:

General: facilitated by a caregiver/peer
Kentuckiana Lewy Body and Related Dementias Support Group

When: Last Monday of each month at 10:30am

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: Arden Courts of Louisville (in the activities room)

Address: 10451 Linn Station Road Louisville, KY 40223

Contact:

Angela Youngman
502.387.3898
angela.youngman@gmail.com
Arden Courts
502.483.8776

Category:

General: facilitated by a caregiver/peer
Lewy Body Dementia Support Group of the Bluegrass

When: First Tuesday of each month from 6:00 p.m. - 8:00 p.m.

Who: Caregivers and loved ones of those diagnosed with Lewy body dementia

Location: Christ Church

Address: 3801 Harrodsburg Road Lexington, KY 40513

Contact:

Daniel McIlwain
859-948-1660
lbdbluegrassky@gmail.com

Category:

General: facilitated by a caregiver/peer
Northwest Louisiana Lewy Body Dementia Caregiver’s Support Group

When: Fourth Tuesday of every month, 2 p.m. – 3:30 p.m.

Who: Family and friends of people with LBD.

Location: Hospice of Shreveport/Bossier

Address: 3829 Gilbert Drive Shreveport, LA 71104

Contact:

Grace Holcombe
800.824.4672
gragra02@att.net

Category:

General: facilitated by a caregiver/peer
Central Massachusetts LBD Caregivers Support Group

When: First Wednesday of every month, 6:30 p.m. – 8:00 p.m.

Who: Caregivers and families of people diagnosed with Lewy body dementia.

Location: Southgate at Shrewsbury

Address: 30 Julio Drive Shrewsbury, MA 01545

Contact:

Cathy Flanagan
508.735.2059
Catmandu117@aol.com

Category:

General: facilitated by a caregiver/peer
Metro Boston LBD Caregiver Support Group

When: Second Thursday of every month, 6:00 p.m. – 7:30 p.m. (Please call to confirm the date and time.)

Who: For caregivers and family members of people diagnosed with Lewy body dementia.

Location: Board Room at Sherrill House

Address: 135 South Huntington Avenue Jamaica Plain, MA 02130

Contact:

Victoria Ruff
617.710.0136
octoryrose@yahoo.com

Category:

General: facilitated by a caregiver/peer
Norfolk County LBD Caregivers Support Group

When: First Monday of every month, 6:30 p.m. - 8 p.m.

Who: For caregivers and family members of people diagnosed with Lewy body dementia.

Location: Contact Kristin Orr for the meeting location.

Address: Contact Kristin Orr for the meeting location. Contact Kristin Orr for the meeting location., MA 99999

Contact:

Kristin Orr
617.650.0717
southshoreLBD@gmail.com

Category:

General: facilitated by a caregiver/peer
North Shore Atypical Parkinson’s Support Group

When: Meets quarterly, 1:00 p.m. – 3:00 p.m. Contact Ann Aversa for dates.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Lahey Clinic Medical Center (Contact Ann Aversa for information about the meeting room location at the Lahey Clinic.)

Address: 41 Mall Road Burlington, MA 01705

Contact:

Ann Aversa
617.872.8356
bappsg@comcast.net

Category:

General: facilitated by a caregiver/peer
Baltimore County LBD Caregiver Support Group

When: Contact Kathleen Hadaway for details.

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: Morningside House of Satyr Hill

Address: 8800 Old Harford Road Parkville, MD 21234

Contact:

Kathleen Hadaway
443.802.0734
kathycake@verizon.net

Category:

General: facilitated by a caregiver/peer
Portland Area Atypical-Parkinson’s Support Group

When: Meets quarterly. Contact Janet Edmunson for dates and times.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Location: Parkinson's Information & Referral Center At Maine Health Learning Resource Center

Address: 5 Buckman Road, Suite 1A Falmouth, ME 04105

Contact:

Janet Edmunson
207.799.4963
janet@janetedmunson.com
Barby Johnson
207.633.0881
rockyledges@yahoo.com

Category:

General: facilitated by a caregiver/peer