Local LBD Support Groups
Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of someone diagnosed.
If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.
Men’s-Only Lewy Body Dementia and Related Dementias Virtual Support Group
To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply. (If no groups are listed, consider launching one in your community. Click here to become a volunteer.)
Local LBD Support Groups
Tampa Bay LBD Caregiver Support Group
When: Second Monday of every month from 3:00 pm to 4:00 pm
Who: Caregivers and family members of those diagnosed with Lewy body dementia.
Location: USF Health Byrd Alzheimer’s Center
Address: 4001 E. Fletcher Avenue Tampa, FL 33613
Contact:
Nancy Teten, LCSW
(813) 974-6355
(813) 974-6355
Andrea Dombrowski
(813) 974-6355
(813) 974-6355
LBDA Affiliate: Yes
Atlanta Early Memory Loss Group/Class
When: Fridays for 8 weeks, 10:30 a.m. - noon. Held twice a year in September-October and again in February-March.
Who: Open to people with mild cognitive impairment, early Alzheimer’s disease, early LBD and early frontotemporal dementia. Couples are invited to participate where one person has been diagnosed with mild memory and cognitive changes. The group is divided so that the member of the couple who is experiencing memory or cognitive changes meets in one group and their spouse/care partner meets in another group. Single individuals experiencing early memory loss are also invited to participate in this group. They may come alone but are encouraged to bring a friend and/or family member to participate in the care partners group. Topics include: common changes in people faced with cognitive changes, role changes, memory aides, planning for the future and stress reduction.
Location: Emory Alzheimer’s Disease Research Center
Address: 1841 Clifton Road Atlanta, GA 30329
Contact:
LBDA Affiliate: Yes
Caregiver Challenges Class: Everything A Caregiver Needs to Know about the Middle Stage of Dementia
When: Fridays for 6 weeks, 10:30 a.m. – noon. Held twice a year in November-December and again in April-May.
Who: Class is designed to prepare caregivers for the middle stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. These progressive neurodegenerative diseases require families to plan for the future. Proactive planning can help ensure a high quality of life for the person with the illness as well as their family. Topics include: middle stage disease symptoms, behavior changes and strategies to cope with the changes, treatment options, legal planning issues, and resources to meet evolving needs.
Location: Emory Alzheimer’s Disease Research Center
Address: 1841 Clifton Road Atlanta, GA 30329
Contact:
LBDA Affiliate: Yes
East Metro Atlanta Lewy Body Dementia Support Group
When: Second Tuesday of every month, 10:00 a.m. – 12:00 p.m.
Who: For caregivers and family members of those diagnosed with Lewy body dementia.
Location: Merryvale Assisted Living Facility
Address: 11980 Highway 142 Oxford, GA 30054
Contact:
LBDA Affiliate: Yes
Late Stage Dementia Class: Things A Caregiver Needs to Know about Late Stage Alzheimer’s Disease, LBD and Frontotemporal Dementia
When: Fridays for 4 weeks, 10:30 a.m. – noon. Held twice a year in January and again in May-June.
Who: Class is designed to prepare caregivers for the late and terminal stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. Topics to be covered include late stage physical symptoms of neurodegenerative diseases, ethical dilemma’s that may occur and services available during the late stage, such as Hospice.
Location: Emory Alzheimer’s Disease Research Center
Address: 1841 Clifton Road Atlanta, GA 30329
Contact:
LBDA Affiliate: Yes
IA/IL Quad Cities Lewy Body Dementia Support Group
When: Third Tuesday of every month, 7:00 p.m. - 8:30 p.m.
Who: Caregivers and family members of those diagnosed with Lewy Body Dementia. Professionals working with LBD are also welcome.
Location: Trinity Hospital (in basement room A&B)
Address: 4500 Utica Ridge Road Bettendorf, IA 52722
Contact:
LBDA Affiliate: Yes
Quad Cities LBD Caregivers Group
When: 2nd Thursday of each month at 7:00 p.m.
Who: Caregivers, friends and family of those diagnosed with Lewy body dementia
Location: Illini Larson Center
Address: 855 Illini Drive, Classroom A, Lower Level Silvis, IL 61282
Contact:
LBDA Affiliate: Yes
Fort Wayne Lewy Body Dementia Support Group
When: Group is in formation now. Contact facilitator for meeting details
Who: For both caregivers and those diagnosed with LBD.
Location: Turnstone Center
Address: 3320 North Clinton Street Fort Wayne, IN 46805
Contact:
LBDA Affiliate: No
Kentuckiana Lewy Body and Related Dementias Support Group
When: First Wednesday of every month, 11:00 a.m. – 12:00 p.m.
Who: Dementia caregivers, including Lewy body dementia caregivers.
Location: Arden Courts of Louisville (in the activities room)
Address: 10451 Linn Station Road Louisville, KY 40223
Contact:
LBDA Affiliate: No
Lewy Body Dementia Support Group of the Bluegrass
When: First Tuesday of each month from 6:00 p.m. - 8:00 p.m.
Who: Caregivers and loved ones of those diagnosed with Lewy body dementia
Location: Christ Church
Address: 3801 Harrodsburg Road Lexington, KY 40513
Contact:
LBDA Affiliate: Yes
