-A +A

Local LBD Support Groups

Seeking support? Connect with individuals, families and caregivers who are seeking support during life's challenging times. With support groups in over 30 states and internationally in Canada, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of  someone diagnosed. 

If you are a loved one caring for a loved one and there is no local support group in your area or you can’t get to a support group meeting due to your caregiver responsibilities, please connect in our virtual support groups.

Men’s-Only Lewy Body Dementia and Related Dementias Virtual Support Group

To find a support group in your local area, select your state's two letter abbreviation from the drop down menu and click apply.  (If no groups are listed, consider launching one in your community.  Click here to become a volunteer.)

Local LBD Support Groups

Highlands County Area Weekly Evening Caregiver Support Group

When: 2nd and 4th Thursday each month 6:00pm-7:00pm

Who: Family members of loved ones with progressive dementia.

Location: Sebring Christian Church

Address: 4514 Hammock Road Sebring, FL 33872

Contact:

Jean Maas
863.314.9193
jeanmaas@embarqmail.com
Ellen McKissock
863.385.5408

Category:

General: facilitated by a caregiver/peer
Indian River County Area Weekly Daytime Caregiver Support Group

When: Monthly

Who: Family members of loved ones diagnosed with Lewy Body Dementia

Location: Alzheimer & Parkinson Association of Indian River County

Address: 2300 5th Ave. Suite 150 Vero Beach, FL 32960

Contact:

Paulette Liebman
772-770-1656 or 772-766-0800
plieb2@yahoo.com

Category:

General: facilitated by a caregiver/peer
Jacksonville, FL - Mayo Clinic Memory Disorder Clinic Alzheimer’s and Related Dementia Education Series and Caregiver Support Group

When: Third Tuesday of every month, 10:45 a.m. – noon.

Who: For family members to improve their understanding of dementia, including symptoms and behavior changes as well as understand the progression of the disease, plan for the future, and provide knowledge to assist in their caregiving role.

Location: Mayo Clinic Memory Disorder Clinic, Cannaday Building – Room 1106

Address: 4500 San Pablo Road Jacksonville, FL 32224

Contact:

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
North Pinellas County Lewy Body Dementia Support Group

When: Third Monday of every month, 6 p.m. to 7:30 p.m.

Who: Lewy body dementia caregivers and family members.

Location: Arden Courts Dementia Assisted Living (behind Manor Care)

Address: 2895 Tampa Road Palm Harbor, FL 34684

Contact:

Debbie Langrock
727.784.6597 or 727.686.9272
dlangrock@preferhome.com

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Pinellas County/Largo (daytime) Dementia Caregiver Support Group

When: First and third Friday of every month, 9:30 a.m. – 11 a.m.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: Grand Villa Assisted Living

Address: 750 Starkey Road Largo, FL 33771

Contact:

Karen (Karle) Truman, Ph.D.
727.391.9999 on Mondays – Thursdays, 9 a.m. – 4 p.m.

karenkarle@knology.net

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Pinellas County/Largo (evening) Dementia Caregiver Support Group

When: First and third Tuesday of every month, 6 p.m. – 7:30 p.m.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: Grand Villa Assisted Living

Address: 750 Starkey Road Largo, FL 33771

Contact:

Karen (Karle) Truman, Ph.D.
727.391.9999 on Mondays - Thursdays, 9 a.m.- 4 p.m.
karenkarle@knology.net

Category:

Professional: facilitated by a professional at an advocacy organization, long-term care facility, or other group
Polk County/Cypress Gardens Dementia Caregiver Support Group

When: Fourth Wednesday of every month, 10 a.m. - 11:30 a.m.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Location: The Meadows at Cypress Gardens

Address: 3050 Woodmont Avenue Winter Haven, FL 33884

Contact:

Suzanne Lull
863.676.6000
suzcl63@gmail.com

Category:

General: facilitated by a caregiver/peer
Tampa Bay LBD Caregiver Support Group

When: Second Monday of every month from 3:00 pm to 4:00 pm

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Location: USF Health Byrd Alzheimer’s Center

Address: 4001 E. Fletcher Avenue Tampa, FL 33613

Contact:

Nancy Teten, LCSW
(813) 974-4355
Betsy McDargh, Family Facilitator
813-486-1256
tampabaylewybodycaregivers@gmail.com

Category:

General: facilitated by a caregiver/peer
Atlanta Early Memory Loss Group/Class

When: Fridays for 8 weeks, 10:30 a.m. - noon. Held twice a year in September-October and again in February-March.

Who: Open to people with mild cognitive impairment, early Alzheimer’s disease, early LBD and early frontotemporal dementia. Couples are invited to participate where one person has been diagnosed with mild memory and cognitive changes. The group is divided so that the member of the couple who is experiencing memory or cognitive changes meets in one group and their spouse/care partner meets in another group. Single individuals experiencing early memory loss are also invited to participate in this group. They may come alone but are encouraged to bring a friend and/or family member to participate in the care partners group. Topics include: common changes in people faced with cognitive changes, role changes, memory aides, planning for the future and stress reduction.

Location: Emory Alzheimer’s Disease Research Center

Address: 1841 Clifton Road Atlanta, GA 30329

Contact:

Susan Peterson-Hazan, MSW, LCSW
404.728.6273
speter2@emory.edu

Category:

General: facilitated by a caregiver/peer
Caregiver Challenges Class: Everything A Caregiver Needs to Know about the Middle Stage of Dementia

When: Fridays for 6 weeks, 10:30 a.m. – noon. Held twice a year in November-December and again in April-May.

Who: Class is designed to prepare caregivers for the middle stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. These progressive neurodegenerative diseases require families to plan for the future. Proactive planning can help ensure a high quality of life for the person with the illness as well as their family. Topics include: middle stage disease symptoms, behavior changes and strategies to cope with the changes, treatment options, legal planning issues, and resources to meet evolving needs.

Location: Emory Alzheimer’s Disease Research Center

Address: 1841 Clifton Road Atlanta, GA 30329

Contact:

Susan Peterson-Hazan, MSW, LCSW
404.728.6273
speter2@emory.edu

Category:

Educational: facilitated by a professional; educational classes are provided