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LBD Caregiver Link

LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:

  • Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD
  • Offering emotional support
  • Referring families to additional LBDA programs and services as appropriate for their needs

While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA.  They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.

When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. While volunteers are not able to offer medical advice and are not medical professionals, they can help identify information and resources which will answer many of your questions.

Toll-free LBD Caregiver Link – 800.539.9767
For caregivers who do not have Internet access or who wish to speak to someone, the toll-free accessline provides a link to experienced LBD caregivers. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.

E–mail Support
E-mail correspondence with LBDA allows caregivers with Internet access to ask questions, seek information, and connect via e-mail with other experienced LBD caregivers. To send an e-mail to our LBD Caregiver Link, fill out the form on the Contact page.