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July 2012 Newsletter

Request for Proposals : LBD Biomarker Pilot Grant

The Lewy Body Dementia Association (LBDA) and The Alzheimer's Drug Discovery Foundation (ADDF) have issued a Request for Proposals for the 2012 ADDF/LBDA Lewy Body Dementia Biomarker Research Award. This award will provide selected programs with up to $100,000 for one year of support to catalyze a research project focused on developing innovative biomarkers that aid in early diagnosis, detection and disease monitoring of Lewy body dementia. Public and private nonprofit academic institutions and for-profit biotechnology companies worldwide are invited to submit applications. Click here for more information.

LBD Story: Water with a Twist of Lemon

“We just returned from the Cleveland Clinic. My husband’s meds weren’t changed, which is a good thing. Anytime they don’t need to increase anything, I always figure that’s good. While making the 5 hour drive home, I had an epiphany of sorts: Managing a progressive illness is really about medication, adaptation and attitude.”

Lisa Cooke views LBD as a lemon that life handed her husband, but she doesn’t fret that she can’t make lemonade out of it. Read her LBD story.

Standing Strong with LBDA this October for LBD Awareness Month

Join us for the LBD Awareness Movement! Sign up by July 31st to be included in the Hub of Hope Directory and to connect with other LBD families! Register today!

If you missed the Webinar: Shine a Light in Lewy Body Dementia with Coleen Greco on how to create awareness for LBD in your community, it is now available online!

Ten Great Reasons to Volunteer

Part of being a great volunteer is loving what you're doing. There are dozens of reasons why you should volunteer; just find the one that feels right for you!

  • Help others
  • Make a difference
  • Connect with your community
  • Contribute to a cause that you care about
  • Use your skills in a productive way
  • Develop new skills
  • Explore new areas of interest
  • Get out of the house
  • Make new friends
  • Your favorite reason here

Learn more about volunteering with LBDA at one of our semi-monthly “Intro to LBDA Volunteering” online classes. For more information, check out our Events Calendar or e-mail lendahand@lbda.org.

NEW LBD Book: Treasures in the Darkness by Pat Snyder

“One of the smartest choices I have made in caregiving was the early remodeling of the bathroom. My caregiving friends all told me the bathroom was a crucial point of stress for them. Once again I was choosing to invest in home improvement proactively to postpone the need for possible earlier nursing home support.”

Bathroom Before and After

We had a traditional bathroom with a combination tub/shower and floor-mounted toilet that was not going to work with movement issues for John or for me as I aged with back problems…” Read the full excerpt here.

News You Can Use From Other Resources

Webinar: Reducing the Impact of Negative People-for Caregivers

LBDA will offer a free webinar for family and professional caregivers featuring Dr. Janet Edmunson, M.Ed. The webinar will be held on July 31, 2012, 7:00 pm - 7:30 pm (EDT), and all attendees will be entered into a drawing for Janet’s book, Finding Meaning with Charles.

Click here for more information and to register.

Community Resource Finder

Community Resource Finder is a search engine offered by the Alzheimer's Association that enables those with dementia and their caregivers to locate programs, services and resources in their communities. The system collects information from several sources, including Alzheimer's Association chapters and SNAP for Seniors, a leading source of information on care and living choices for seniors.