Text Size: A+  A-  Reset

At the Lewy Body Dementia Association, we understand that many families are touched by Lewy body dementia. Whether you’ve been recently diagnosed, you’re a caregiver, a healthcare professional, or you’re looking for more information – we’re here for you. We’ve created our homepage to help LBD families quickly access up-to-date information about LBD to help prepare for some of the changes ahead. 

Caregiver FAQs available

The Lewy Body Dementia Association is offering the first installment of frequently asked caregiver questions on Lewy body dementia symptoms and diagnosis, treatment, living with LBD, physician awareness, caregiving, genetics and research.

The questions come from a recent scientific webinar on dementia with Lewy bodies aimed at physicians and researchers and hosted by the Alzheimer Research Forum. Nearly 400 LBD caregivers participated, and caregivers submitted more than 100 questions on LBD clinical care to the panelists.

Due to the tremendous caregiver response, the Alzheimer Research Forum turned to the Lewy Body Dementia Association to provide answers to a broad assortment of caregiver questions.

Click here to read the caregiver FAQ.
Click here to listen to the webinar. 

Learn more about LBD:

What is LBD?

Diagnosis

Symptoms

Treatment Options

Join our Online Communities!

Caregiver and Patient Forums

LinkedIn Community 

 Facebook 
 

New resource for physicians treating Lewy body dementia

LBDA is pleased to provide medical professionals with the latest authoritative information on Lewy body dementia (LBD) through a new online resource. Physicians, nurses and other health care professionals will now find easy-to-read tables and figures on LBD diagnosis and treatment options along with family- and patient-centered publications that can be downloaded or ordered at no cost by clicking here. (Scroll down upon landing on page.)

LBDA is grateful to the Jerry Carpenter Lewy Body Disease Fund, a Subcommittee of the Turner Family Foundation, Foundation for The Carolinas, for its financial support in providing these free resources on LBD to physicians and the families they serve.

The materials were developed by the 20-member LBDA Scientific Advisory Council, an international group of experts in Lewy body dementia and related issues.

Read the Lewy Body Digest today!

The June 2009 issue of LBDA's eNewsletter, the Lewy Body Digest, is now available online and features the following articles:

  • LBD Story - The Power of Love
  • Biomarker Symposium Planned
  • Local Events Raise LBD Awareness
  • Ten Years Later, A New Volunteer Steps Up
  • Caregiver Finds Online Support
  • Young-Onset Dementia Families Sought
  • Elder Law Podcasts Available
  • LBDA to Feature Excerpts from Living with Lewy's
     

You can read the current issue and archives of the Lewy Body Digest by clicking here. 

It you don't already receive our newsletter, click here to subscribe to the Lewy Body Digest today!
  

Learning about Lewy body dementia - start here

The Lewy Body Dementia Association's newest publication, An Introduction to Lewy Body Dementia, is already in high demand by LBD families, physicians and aging resources.

An Introduction to Lewy Body Dementia is written especially for those newly diagnosed with Lewy body dementia and others still seeking answers. The booklet also includes a detachable medical alert card which refers to a companion webpage for emergency room physicians. You can view booklet online in English and Spanish by clicking here.

If you would like to receive a hardcopy of the booklet, please visit your local Area Agency on Aging or click here to learn how to request your copy of the booklet or wallet card by mail.

Here are some helpful materials to print out and read at your convenience.  (These materials can be viewed with Adobe Reader, which can be downloaded for free from Adobe.)

For Families

For Professionals

 

 


Site Index | Contact LBDA | Terms and Policies